That takedown was boss. Thank you. As a parent of two autistic children, and uncle to many more in my family, I can say that it is clear their minds develop differently, and many high-functioning autists successfully mask it and make it later in life. And these are quite often extremely gifted intellectually and academically, to the degree that while life is a struggle for them socially, they are far better than their 'norm' peers in other areas. I've not seen anything from RFK Jr beyond trying to support his anti-vaccine stance and what I would at best call evidence for 'othering' autistic people. And if he thinks he is going to make them victims, I can assure you he will find myself, my family, and the community at large ready and eager to destroy him. One could make a more coherent argument that we should create a database of those who lack empathy, the narcissistic sociopaths among us, and place them in camps and let them tear each other apart.
It really wasn’t any sort of “takedown”. It was the same stuff people have been saying on the internet for years that’s disconnected from what is reality for so many parents.
It absolutely refuted every inane speculation you made. I understand you clearly aren’t here to listen or change your mind, so it unfortunately passed right over your head.
It didnt, It was a list of wishful thinking. I have more exposure to families with previously called "low functioning as it relates to children, and plenty of adults who are very capable and high functioning.
What I do not see people willing to discuss
Parent getting called to school 3-4x a week, causing issues with work
Child running from school or aide and requiring a tracker program
Police/CPS involvement from "runners"
Destruction of marriage from constant state of stress
Violence to siblings
Inability to give attention equally in the family
Incredible high divorce rates, parents and any non a to a pairing.
RFK's speech had some issues, but if you read the transcript it does not match the sound bytes
All of his references to negative autism behaviors/impacts were in regards to the 25% of profound autism.
As I said, I know at least a dozen families where the above is their experience. Single moms breaking down on FB because they have no support and stressed to the max, Dad losing out on projects and sales because it cant be trusted he'll be in the office when needed. Siblings hiding away, sick of outbursts,yelling, non stop activity.
It is a disservice to all of those people to act as if the spectrum does not have a far range of activities.
That sure as hell doesnt mean we need to start trying to end "autistic people" and I think it is manipulation to say RFK's prevailing theme has ever been "autism", it has been a belief that the weaknesses in our food and drug systems are increasing chronic illnesses, mutations etc. Some headlines travel longer, the AIDS/HIV denial and Faucci hate should have got way more attention.
Its not RFK's words, its the media's practice of hyperbolic language that causes any real or perceived damage to the community.
I dont believe there is a connection to find, but maybe this will end the snipe hunt and that funding can just go towards creating spaces and education that allow for a range of interaction and social styles after September. But to ignore both sides of the experience is disingenous and is certainly a slap in the face to the families experiencing real hardship from their child's divergence.
I am not even a fan, I just despise the lazy characterizations that get slung around in all emotional spaces, he is mostly a careful speaker, especially compared to the norms now.
It's interesting because that list you provide ("Parent getting called to school 3-4x a week" etc.) is a good summary of my household growing up. Me, my sister, and my father are neurodivergent and on the spectrum.
But we are people that others would not consider to be in the 25% RFK is referring to. Yet, at some point in our lives we were. Growing up I was less verbal than I am now, and I was often paired to play with other autistic kids who were totally non verbal and died early because of their autism. So I'm well aware of the extent of the spectrum.
So I agree with this:
> It is a disservice to all of those people to act as if the spectrum does not have a far range of activities.
However I find it is RFK and not the poster you are replying to who fails to recognize autism as a spectrum. Indeed, if you read the transcript of his speech he does not refer to autism as a spectrum until the end, when a reporter frames it in those terms as part of a question. Instead, he very clearly keeps referring to autism as a binary of "profound" versus I suppose "regular" autism, which is not at all how autistic people experience autism.
What RFK does is juxtapose debilitative autistic behavior (nonverbal) with very normal autistic behavior (toe walking) and he lumps it into a category he calls "profound autism" which is not recognized as a category of autism, nor is it precise or descriptive enough to have a clear meaning. I'm already in an argument with another poster about that, I don't want to open up another front on that issue, you can read my thoughts about that in my comment history.
> Its not RFK's words
For me, it is his words. I've read the transcript free of any media filtering and the actual words he uses are causing real damage to the autistic community.
> snipe hunt and that funding can just go towards creating spaces and education that allow for a range of interaction and social styles after September. But to ignore both sides of the experience is disingenuous
You frame their concerns as a "snipe hunt" -- the opposite of genuine; yet characterize refusing to entertain them as being disingenuous and a slap in the face of autistic people. I don't understand, wouldn't dragging autistic people into a farcical excuse to prove some nonsense about the food system be far more damaging to autistic people and their families? Why can't we just not do the snipe hunt and use the money right now for creating spaces and education?
> lazy characterizations that get slung around in all emotional spaces, he is mostly a careful speaker, especially compared to the norms now.
I think this is a lazy characterization because you don't support it with any evidence. In my post history I highlight several examples from the transcript in which RFK is not careful with his language, and instead paints autistic people with a broad brush and engages in strange conspiracy theorizing in his official capacity as HHS director. Again, this is free from any media bias as it is the direct transcript from this press conference.
> As a parent of two autistic children, and uncle to many more in my family, I can say that it is clear their minds develop differently, and many high-functioning autists successfully mask it and make it later in life. And these are quite often extremely gifted intellectually and academically, to the degree that while life is a struggle for them socially, they are far better than their 'norm' peers in other areas.
This is one of the most uplifting thing I have heard in a while! Your children and the autistic kids in your family are very lucky to have such insightful, empathetic and caring adults like you around. Your presence make a huge difference in their lives. And as they grow up, they'll gift you a lot of unexpectedly sweet and proud moments. Good Luck!
> And if he thinks he is going to make them victims, I can assure you he will find myself, my family, and the community at large ready and eager to destroy him.
That's a very heartwarming and empowering statement! Some people argue that high-functioning autistics shouldn't talk for low-functioning autistics. But the autistic and the medical communities doesn't hold that distinction. Only 3 levels of disabilities exist. When I see the 'low-functioning' autistic people, I recognize in them the intense versions of the emotions and feelings that I'm all too painfully familiar with. That's why I decided to make an impassioned stance here. Yes! I'm seriously concerned about the safety and welfare of my peers - the only people I could ever understand.
All this dogma, greed and misinformation threatens the lives of millions of kids, a huge number of very innocent individuals and the very roots of the knowledge and profession we held dear throughout our lives. I don't know why some people hold on to false promises and rhetoric. But the final result of that is recorded very clearly in history. If only they did a bit of research on that too. It's very disturbing that many still can't see the very obvious danger signs. However, the stakes are too high to just watch and worry. Now is the time our voices and actions matter!
I'm bowing out of this debate. I have no illusions of being able to break people out of their artificial realities. But I think I made the point I wanted to - to record a sample of the false information about autism out there and its hollowness. Thank you again for being a decent and awesome human being! I hope we will have more allies like you. Thanks!
